The NHS in England offers opportunities to have your say on policy decisions which affect your HIV treatment and care.
In England there is a Clinical Reference Group (CRG) on HIV. The CRG is responsible for developing policies on which HIV treatments will be available from the NHS. They also create the 'Service Specification' for HIV clinics, which sets out what care should be provided.
The CRG membership is mostly made up of HIV doctors. There are also patient and carer representatives. You can see the membership of the HIV CRG on their website .
Anyone can sign up to be a 'Stakeholder' to the HIV CRG. This means that you can get email updates and you will be asked your opinion on any draft policies they are working on - before they are formally approved.
To sign up, fill in the online CRG registration form.
Local opportunities to influence NHS policy
You can also get involved with NHS policy at the local level. To find out more, visit My Care My Voice, our guide to everything you need to know about your rights in health and social care, and how to shape your HIV services in England.